patient’s voice

Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development

Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development By Hannah Eccard FDA’s focus of incorporating the patient voice into the drug development process requires the life science industry to engage in new research strategies. Based on what we're seeing so far from the FDA, it appears that the agency [...]

Video Vignettes: Through Their Own Eyes: Autoimmune Diseases

Video Vignettes: Through Their Own Eyes: Autoimmune Diseases The Autoimmune Diseases Support Community on Inspire created over 25,000 posts this past year. One of the over 21,000 members shared her experience with the community in a video. JTNDaWZyYW1lJTIwd2lkdGglM0QlMjI1NjAlMjIlMjBoZWlnaHQlM0QlMjIzMTUlMjIlMjBzcmMlM0QlMjJodHRwcyUzQSUyRiUyRnd3dy55b3V0dWJlLmNvbSUyRmVtYmVkJTJGUS1WSTcwQ1QzZlUlMjIlMjBmcmFtZWJvcmRlciUzRCUyMjAlMjIlMjBhbGxvdyUzRCUyMmF1dG9wbGF5JTNCJTIwZW5jcnlwdGVkLW1lZGlhJTIyJTIwYWxsb3dmdWxsc2NyZWVuJTNFJTNDJTJGaWZyYW1lJTNF According to the NIH, there are over 80 diseases caused by the immune system [...]

Lost Voice: Addressing healthcare inefficiencies through patient equality

Lost Voice: Addressing healthcare inefficiencies through patient equality After attending the Healthcare Information Management Systems Society (HIMSS ) 2018 in Las Vegas in March, Christina Farr, the CNBC reporter who covers health and technology, tweeted I have one observation post-HIMSS, now that i'm back in SF. There was an elephant in the [...]

Video Vignettes: Through Their Own Eyes: Ovarian Cancer

Video Vignettes: Through Their Own Eyes: Ovarian Cancer Members of the Ovarian Cancer Support Community on Inspire often refer to each other as “Teal Sisters*.” It's a term of solidarity and camaraderie as they face their condition together. Their posts reflect and express warmth, concern, understanding and an eagerness to help. Below [...]

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery Our hearts start to beat at around a month and a half into pregnancy.1 We may take its constancy for granted until something goes wrong. Worldwide, cardiovascular disease is the leading cause of death with 17.7 million deaths each year.2 Coronary artery disease [...]

Video Vignettes: Through Their Own Eyes: Hepatitis C Virus Liver Disease

Video Vignettes: Through Their Own Eyes: Hepatitis C Virus Liver Disease October is Liver Awareness Month.  Today, Inspire is sharing information about the Hepatitis C virus and its impact on the liver. Roughly 3 to 4 million people in the US have the hepatitis C virus (HCV).1  Yet progression and outcomes vary.  Of [...]