Engaging Emails Meet the Mark: Fostering Relationships By Linnea Madsen, Odin Soevik, Zeba Khan Inspire utilizes several strategies to engage with our members; one method is our Activity Summary emails. With the Activity Summary, we feature all new discussion posts, replies and reactions -- the activity – that occurs in all of [...]
How Does Pharma Learn to Speak Patient? The "Patient Voice" By Sara Ray, MA We have all, at one time or another, been patients. True or false? If you answer true, it is likely that you are a person who has experienced only acute illnesses, meaning you get sick, feel lousy, [...]
Genetic testing: What patients and caregivers understand and value By Richard Tsai There’s been an explosion of information about genes, genetics and genomics since completion of the Human Genome Project in April 2003. Stories about remissions achieved through pharmacogenomics and immunotherapy and disease risk factors identified through genetic testing fill both [...]
Are You Listening to Patients? Patient Preferences and Clinical Trial Design By Kathleen Hoffman, PhD, MSPH Last fall, over 1500 Inspire members living with sarcoidosis, scleroderma, ovarian cancer, prostate cancer, colorectal cancer, arthritis and psoriasis, completed a survey on exploring patient preferences and insights on clinical trials. Our recent webinar, "A Hopeful [...]
The Patient Is Speaking: 5 Benefits of Patient Focused Drug Development Sponsors and CROs Need to Know By Sara Ray, MA Since the 2012 FDASIA reauthorization of the Prescription Drug User Fee Act (PDUFA) and the 21st Century Cures Act ‐‐ Directing and Enabling Patient Focused Drug Development in 2016, integrating the [...]
Virtual Patient Engagement: Inspire and the NIH Clinical Center Engagement with patients and caregivers is at the heart of Inspire’s community of cancer, chronic, and rare disease support groups. While there are many ways Inspire can help the industry engage with a targeted patient population, virtual patient engagement and authoritative expert content [...]
Introducing Inspire Recruit Commonly discussed statistics on patient enrollment and retention in clinical research paint a bleak picture. Clinical trial on-time completion rates are low--only around 20%. This is due in part to the fact that 85% of clinical trials fail to retain enough patients.1 The causes may lie in the low [...]
