ALS

Bringing Patients and the Life Science Industry Together: Patient Advocacy +
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Bringing Patients and the Life Science Industry Together: Patient Advocacy +

Bringing patients and the life science industry together: Patient Advocacy + By Robert Schultz “Progress is personal,” according to Bob Coughlin, President and CEO of the Massachusetts Biotechnology Council (MassBio) and the father of a graduating high school senior with cystic fibrosis (CF). Coughlin’s keynote opened a unique virtual event called Patient [...]

Jun 2020By Robert Schultz|topic1|1 Comment

Listen to People Impacted by Rare Disease
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Listen to People Impacted by Rare Disease

Listen to People Impacted by Rare Disease By Kathleen D. Hoffman, PhD “The success (or failure) of the majority of rare disease drug development programmes rests on surrogate outcomes (e.g. laboratory measures, organ size) that may not reflect treatment benefits that patients value.”1 ~Morel and Canto Thomas Morel and Stefan Canto’s [...]

Oct 2018By Kathleen Hoffman, PhD|topic1|0 Comments