Project Description

About This Case Study

On Inspire, rare disease patients post online about their immediate needs as they live with their conditions. These daily life successes and challenges, articulated online, provide unique guidance about what is happening in the real world outside of the clinical setting.  A HEOR pharmaceutical executive came to Inspire to learn about the rare disease journey through a sociolinguistic analysis of over six years of discussions on Inspire.

 1) Learn how Inspire’s research team obtained valuable information about daily living with this rare condition for our client.

2) Find out about patient unmet needs and treatment information that is available on Inspire. 

3) Understand how Inspire’s research team identified top online influencers of this rare disease patient community for our client.

Download, “Real World Voice Insights: Communicating about Rare Disease”

Subscribe to Inspire's Patient Pulse blog(Required)