Project Description
Rare Disease Day
Access to Genomic Medicine: Perspectives from the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community
About this Poster
Inspire partnered with Boston Children’s Hospital and The Ehlers-Danlos Society on an NIH-funded research project on barriers to accessing genomic medicine. In this poster, we explore these barriers to genomic medicine through an analysis of online community posts within the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community on Inspire.
Click below to download Access to Genomic Medicine: Perspectives from the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community
